Advance Care Planning
Collette McClelland Phone: 9330 9960
What is Advance Care Planning?
Advance Care Planning (ACP) involves a patient thinking about and communicating to others how they would like to be treated in the future if they have a condition where they can no longer speak for themself. This may happen, for example, as a result of stroke, progressive dementia, or becoming unconscious from some form of accident or illness.
An Advance Care Directive (ACD) is a component of an Advance Care Plan and contains information relevant to specific areas of healthcare and the values and wishes of an individual which would be expected to impact on treatment options. Numerous directives have been developed by a variety of organisations to meet the needs of our diverse population. Indeed, any written and recorded statement of wishes is legally binding. Endorsement by a medical practitioner is recommended but not essential.
Why Advance Care Planning is important?
Undertaking ACP means that future decisions about a person's care are more likely to reflect their wishes. ACP identifies sensitive issues and clarifies the actions an individual would prefer in certain medical situations should they occur in the future. For many reasons these topics of discussion between family, carers and GPs are often avoided. Having an ACP means other people will not have to make decisions on a person's behalf without any knowledge of that person's feelings or wishes. It also reduces the likelihood of confusion and conflict regarding decisions of care between all parties involved. With an ACP in place a person can feel comfortable and reassured that there will be a common and calm approach to their care toward end-of-life.
What does ACP involve for GPs?
The role of GPs in advance care planning may include:
- discussing the idea of advance care planning with patients/residents
- providing patients/residents with information regarding their current health status, prognosis and future treatment options
- witnessing or completing instructional directives where appropriate
- applying patients'/resident's wishes to medical management.
What are the steps involved?
Step 1: Incorporate advance care planning as part of routine care of patients/residents during an ordinary consultation or as part of health assessment
Step 2: Assess capacity of patient/resident to appoint a representative and complete an advance care plan
Step 3: Support discussion and documentation of advance care plan
Step 4: Apply the patient's/resident's wishes to medical care
Step 5: Review plan regularly or when health status changes significantly
Advance Care Directive templates
Visit the SLHD website for templates in documenting an advance care plan.
Useful links that may assist decision making and planning
- NSW Ministry of health has recently released Making an Advance Care Directive – form and information booklet.
- The Royal Australian College of General Practitioners has guidelines on Advance Care Planning.
- Alzheimer's Australia has developed the Start2Talk 1.4 and Start2Talk 1.5 worksheets to assist Advance Care Planning.
- In response to requests from lawyers and medical professionals, New South Wales Government - Attorney General's Department has developed a guide to assessing capacity to make legal, medical, financial and personal decisions.
- NSW Government has grouped together some tools to assist planning. These are relevant for individuals, family, carers as well as health and legal professionals.
Decision Assist Palliative Care Phone Advisory Service
1300 668 908
The service aims to complement existing palliative care services by providing ready access to the latest information and advice about palliative care. Registered nurses specialising in palliative care are on the line to answer and triage calls, with medical specialists available as required. The type of support that will be provided through the service ranges from medication and symptom management, to psychosocial support, bereavement advice and information on education. The phone service is available to medical practitioners and staff working in aged care 24 hours a day, seven days a week and is available Australia-wide for the cost of a local call.
Decision Assist Advance Care Planning Phone Advisory Service
1300 668 908
This service complements Decision Assist Palliative Care Phone Advisory Service Care and provides information on all matters relating to advance care planning. This includes developing and documenting an advance care plan, understanding the legal framework, and communication skills to assist with initiating and guiding conversations. This service is available from 8am until 8pm seven days a week. Both telephone advisory services are part of the Australian Government funded Decision Assist program, which aims to build capacity, linkages and networks in the health and aged care sectors to improve access to palliative care and advance care planning services for older Australians.