Lumos

"Supporting primary care – shedding light on the patient journey in healthcare"

About Lumos

Lumos is a new partnership initiative between Central and Eastern Sydney PHN (CESPHN) and the NSW Ministry of Health (MoH) to assist practices gain a stronger understanding of their patients’ journey across the health system. This is an ethically approved program that securely links data across primary, ambulatory and acute care and will launch in February 2020 within the CESPHN region.

Once consent has been received from practices to allow de-identified data about your patients to be extracted, Lumos presents a unique opportunity to improve patient care through actionable knowledge.

It can:

  • Generate insights into patient journeys across the healthcare system
  • Identify current and emerging population health issues
  • Improve patient experience and quality of care
  • Inform data driven quality improvement and system redesign responses

A pilot project conducted over 4 years across four NSW PHNs successfully extracted data from over 40 general practices, covering approximately 400,000 patients. This collaborative provided the proof of concept for the primary care linkage project which will now expand statewide to all 10 NSW Primary Health Networks across 17 Local Health Districts and over 500 general practices (~4M patients) over the next 3 years.

To successfully deliver the Lumos project, the NSW MoH will invest in technical and relationship capital resting on establishment of a solid foundation of ethics and governance. 

Key features of the process include:

  • Ethical approval and a Code of Practice embedded into the entire process
  • Protection of privacy at each step with state-of-the-art technical approaches that support minimum threats to privacy
  • Established protocols and controls to access aggregated and de-identified data 

A rigorous governance and reporting framework will oversee and ensure the integrity of this project

What's in it for your practice? 

Lumos will support general practice to gain an unprecedented understanding of their patients and how they are interacting with the health system via detailed reports issued every 6 months.
Reports can show things like: 

  • How often do my patients frequently and infrequently go to hospital?
  • Over an average 24-hour period, for patients of your practice, when do potentially avoidable Emergency Department visits occur?
  • How many of my patients had any combination of emergency department presentations, admissions to hospital or death?

This will enable general practices to better:

  • Understand your patient and practice profile compared to your region
  • Demonstrate and improve the quality of patient care your practice provides
  • Support data driven quality improvement activities and participation in related programs
  • Create an evidence base to support areas of future investment in primary care
  • Provide a better understanding of the patient experience of health services
  • Improve provider experience through greater collaboration

Furthermore, it is free, quick & easy to participate. 

Getting started with Lumos:

  1. Contact the Digital Health & QI team: digitalhealth@cesphn.com.au if you would like more information or would like to participate. Project Officers will be approaching general practices in early February 2020 with further information and details.

  2. Complete the consent form (practices will not be eligible to participate without the agreement of all its current practitioners), to be countersigned 

Technical requirements:

If you already have Pen CAT data extraction tool installed, the rest is easy.

pdf See here (38 KB) for additional technical requirements. Contact us for assistance.

Resources Toolkit

 

For further information, please contact: digitalhealth@cesphn.com.au

 

 

 

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