Collaboration

Disability Network

The CESPHN Disability Network is a very active forum with wide membership of 260 members from across the health and disability sectors, including GPs, Allied and community health practitioners, professional bodies, NGOs, NDIA, NSW Ministry of Health, university and hospital representatives, people with disability and their carers.

The network was established in late 2016, with the aim to facilitate a greater understanding of the health role within the disability sector, particularly as it intersects with the NDIS and the implications for participants within the scheme and those falling outside of it. 

The forum provides an avenue for shared understanding and learnings, as well as allowing for robust debate on new health and disability policy as it is shaped and implemented. 

Meetings are held bi-monthly, if you would like to join the Disability Network and for further information, please email j.denford@cesphn.com.au

Specialist Intellectual Disability Health Teams

There are two teams located within the CESPHN region: 

  1. SES SIDHT (South East Sydney Specialist Intellectual Disability Health Team) which is located at St George Hospital
  2. STrIDeS (Specialist Team for Intellectual Disability Sydney) which is located at Croydon Community Health Centre

Evidence shows that people with an intellectual disability have a higher prevalence of physical and mental conditions, higher levels of morbidity and have lower life expectancies than the rest of the population.

Background In 2010-11 the NSW Government funded the initial establishment of three pilot specialised intellectual disability health teams and the ACI Intellectual Disability Health Network. One of the pilot teams was the South Eastern Sydney’s Metro Regional Intellectual Disability (MRID) Team.

In 2018-19 the NSW government announced recurrent funding for three additional Specialised Intellectual Disability Health Teams in NSW as well as funding to continue and further refine and test the service model and approach to capacity building. With this funding, STrIDeS was established.

Aims and Service Offerings

The Specialist Teams aim to better address the health needs of people with an intellectual disability across their lifespan and improve their access to services. The team will:

  • Offer a time limited clinical service to children, teens and adults with an intellectual disability who have complex health conditions and a current unresolved health issue that can’t be addressed through usual care providers and pathways.
  • Conduct an assessment, develop a health care plan, coordinate referrals to specialists and support the person’s treating paediatrician or GP to implement and monitor the health care plan.
  • Provide capacity building services for mainstream health staff providing care to people with an intellectual disability.

Collaboration with mainstream clinicians and GPs is key.

For further information or would like to make a referral please contact:

Intellectual Disability Mental Health Hubs 

There are two statewide IDMH Hubs:

These Hubs have been established to support Local Health Districts and Specialty Health Networks in offering tailored, evidence-based care to people with intellectual disability and complex mental health problems across NSW.

Agency for Clinical Innovation (ACI)

Intellectual Disability Network

Working to improve the experience and delivery of health care for people with intellectual disability of every age by providing clinical leadership, research and education.

Please click here for further information.

Transition Care Network

Working to improve the experience and delivery of healthcare for young people with chronic health problems and disabilities as they transition from paediatric to adult health services.

Please click here for further information.

The Children’s Hospital at Westmead

Child Development Unit

The Child Development Unit provides comprehensive multidisciplinary care to children with complex developmental problems.

Please click here for further information.

Department of Education

Specialist Allied Health and Behaviour Support Provider Scheme

The scheme supports schools that may need to engage specialist allied health services to ensure learning adjustments are appropriate and effective for students.

Please click here for further information.

Council for Intellectual Disability (CID)

The Council for Intellectual Disability is a key partner with the Government as the Primary Care Enhancement Program is developed and rolled out.

The project will include developing training for PHN representatives and a suite of resources for GPs and other primary care professionals, as well as health promotion materials for people with intellectual disability.

The project’s goals are to:

  • Increase knowledge, skills and confidence of health professional to work with people with intellectual disability.
  • Increase capacity of people with intellectual disability to understand and share their health needs with health professionals.
  • Improve communication, diagnosis and treatment of people with intellectual disability.

For more information on the project contact Dr Liz Evans, Manager, Inclusion Projects on 1800 424 065 or email: liz.evans@cid.org.au