Intellectual Disability

 

Vision: To provide effective and efficient health care for people with intellectual disability (ID) by strengthening the skills of GPs and other health professionals, and improving system integration. 

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Project GROW aims to strengthen the pivotal role of primary health professionals to meet the complex needs of people with intellectual disability. 
"Supporting people intellectual disability to access the right care, in the right place at the right time."

Project GROW will provide primary health providers with: 

  • Access to Intellectual Disability Service Navigators who can provide practice support and guidance on referral pathways
  • Practical resources, education and training to enhance practice capacity and efficiency
  • Information on initiatives that include, uptake of Health Assessments, HealthPathways, NDIS and Digital Platforms

For people with lived experience of intellectual disability Project GROW will: 

  • Facilitate access to appropriate, quality health services 
  • Help to ensure equitable access to quality health prevention and health promotion programs

How can I get involved?

The GROW project team are eager to work with primary care providers to identify and address the challenges faced when engaging with this priority population.

For more information please email: IntellectualDisability@cesphn.com.au 

Click here to download the GROW Flyer

 

Health Outcomes for People with Intellectual Disability

 

There are over 13,000 people in the Central and Eastern Sydney region with intellectual disability, a high proportion of those being children. Families and carers are also impacted.

Compared with the general population, people with intellectual disability experience:

  • Over twice the rate of avoidable deaths
  • More than twice the rate of emergency department and hospital admissions
  • Hospital admissions costing twice as much
  • Higher rates of physical and mental health conditions
  • Lower rates of preventative healthcare

In addition, Aboriginal and Torres Strait Islander people, and people from culturally and linguistically diverse backgrounds in our region are population groups who already face multiple barriers facing health care, highlighting the need for a tailored response.

 

National Roadmap for Improving the Health of People with Intellectual Disability

 

On Friday 13th August 2021 the Minister for Health and Aged Care, the Hon Greg Hunt MP, launched the National Roadmap for Improving the Health of People with Intellectual Disability.

The Roadmap sets out a comprehensive plan to improve the health outcomes of people with intellectual disability in Australia over the next 10 years, and aims to address serious health inequities faced by people with intellectual disability. It outlines how we can create a health system where people with intellectual disability are valued, respected and have access to high quality, timely and comprehensive health care.

Priority actions under the Roadmap to:

  • promote the uptake of annual health assessments for people with disability, using best practice assessment tools;
  • improve tertiary education curricula for health professionals so they are better equipped with the knowledge and skills they need to provide high quality care to people with intellectual disability;
  • scope a model for a new National Centre of Excellence in Intellectual Disability Health that provides national leadership on the health care of people with intellectual disability, and can be a central hub of expertise and resources for all health and disability service providers across the country.

The key objectives of the National Roadmap are to:

  • improve support for people with intellectual disability, their families and carers
  • develop better models of care for people with intellectual disability
  • support health professionals to deliver quality care for people with intellectual disability
  • improve the oral health of people with intellectual disability
  • improve monitoring of the health of people with intellectual disability, and
  • ensure that the needs of people with intellectual disability are considered and met in emergency plans and responses.

 

Primary Care Enhancement Program (PCEP)

 

The above National Roadmap Initiatives build on the Primary Care Enhancement Program (PCEP) that is being implemented. CESPHN is one of four PHNs selected to lead the development of the PCEP (Project GROW) over four years with a view to a national rollout.

It will give people with intellectual disability better access to appropriate, quality health services that meet their needs. The four lead PHNs will:

  • Support health professionals in caring for people with intellectual disability.
  • Facilitate access to appropriate, quality health services for people with intellectual disability.
  • Promote take-up and quality of annual Medicare health assessments for people with intellectual disability.
  • Help to ensure people with intellectual disability have equitable access to quality health prevention and health promotion programs.
  • Ensure all of their programs are inclusive for people with intellectual disability.

The Council for Intellectual Disability, who have been critical to the development of this plan, and the PHNs, are developing materials and supports for general practices to help them better engage with and care for people with intellectual disability.