Intellectual Disability
Over 400,000 people in Australia have intellectual disability.
Including their families, two million Australians are impacted.
Compared with the general population, people with intellectual disability experience:
- Over twice the rate of avoidable deaths.
- Twice the rate of emergency department and hospital admissions
- Hospital admissions costing twice as much.
- Higher rates of physical and mental health conditions.
- Lower rates of preventative healthcare.
Submission Disability Royal Commission
pdfClick here (275 KB) to read the latest submission from Central and Eastern Sydney PHN to the Royal commision into violence, abuse, neglect and exploitation of people with disability – Issues paper health care for people with cognitive disability.
Central and Eastern Sydney PHN Success - New Funding - Primary Care Enhancement Program for people with intellectual disability
GPs and other health professionals in four regions will receive greater support to enable them to provide more effective care to people with intellectual disability
The PHNs funded to roll out the Primary Care Enhancement Program for people with intellectual disability are Central and Eastern Sydney PHN, Western Victoria PHN, Central Queensland, Wide Bay, Sunshine Coast PHN, and Tasmania PHN. The funding will give people with intellectual disability better access to appropriate, quality health services that meet their needs
Central and Eastern Sydney PHN is delighted to be one of the four PHNs to receive this funding and it provides a wonderful opportunity.
The Council for Intellectual Disability will be a key partner with the Government as the Primary Care Enhancement Program is developed and rolled out.
For more information please read Minister Hunts announcement here.
Advice sheets for GPs
- A series of high quality advice sheets for health practitioners and health services have been developed to enable a tailored approach to health service provision in relation to COVID-19 prevention, screening and management for people with intellectual or developmental disorders, these have been recently released by the Department of Health.
- The 7 fact sheets can be found here which includes an advice sheet for Primary Health Staff
- 'How can GPs assist people with intellectual disability during COVID-19?' by Dr Aline Smith
A range of easy read information regarding COVID-19 for families carers and workers
Two new Specialist Intellectual Disability Health Teams in the CESPHN region
- pdf A new era for the health of people with intellectual disability (223 KB)
- pdf SLHD GP Factsheet (228 KB)
- pdf SLHD NGO Factsheet (228 KB)
- pdf SLHD NSW Health Factsheet (601 KB)
- pdf SESLHD NSW Health Specialised Intellectual Disability Health teams - GP Factsheet (46 KB)
- pdf SESLHD NSW Health Specialised Intellectual Disability Health teams - NGO Factsheet (43 KB)
- pdf SESLHD NSW Health Specialised Intellectual Disability Health teams - Consumers Factsheet (43 KB)
- pdf SESLHD NSW Health Specialised Intellectual Disability Health teams - Health Factsheet (46 KB)
Specialist Intellectual Disability Health Team Workshop Webinars
The Specialist Intellectual Disability Health teams of SLHD and SESLHD, in partnership with Central and Eastern Sydney PHN, have developed a series of workshops with the aim to increase awareness of how to better care for people with intellectual disability in general and allied health practice.
Recorded sessions now available in our video library:
- 20200513_Supporting, testing and treating people with intellectual disability through COVID-19
- 20200519_Health of people with intellectual disability – Setting the Scene
- 20200820_Health of people with intellectual disability – Adolescence and Early Adulthood
- 20201027_Health of people with intellectual disability – Specific conditions across the lifespan
- 20201117 Health of people with intellectual disability - Focus on complex health issues
Education and Training for Health Professionals
Resources
Below is a list of resources to assist health providers to support, and improve the experience of health care for People with Intellectual Disability
- UNSW Intellectual Disability Behaviour Support Program
- Department of Developmental Disability Neuropsychiatry (3DN)
- Centre for Developmental Disability Health-Monash Health
- Agency Clinical Innovation
-
pdf
ACI Intellectual Disability Health Network FAQs on
Intellectual disability: Information for health professionals (107 KB) - pdf Growing Concerns for Disability Workers (382 KB)
- Transition Care Network
- Trapeze
- Building capability in NSW health services for people with Intellectual Disability: The Essentials
- CarersNSW
- My Carer Gateway - Facilitated by the Benevolent Society
- Carer Gateway
- Carer Peer Connect
- Siblings Australia
- Kids Help Line
- Council for Intellectual Disability Health Resources
- My Health Matters Folder – Council for Intellectual Disability
- Council for Intellectual Disability - My Health Matters folder
- Talk to Me: Treating People with Intellectual Disabilities with Respect
- Prevention of DV of Women with Intellectual Disability
- Intellectual disability, sexuality and sexual abuse prevention
- My Healthcare Rights – A guide for people with cognitive impairment
- About healthcare rights for people with cognitive impairment - Easy English Guide
- Sunny app